Caregiving Tips & News

“Every successful boxer knows the importance of having quality trainers work their corner. The great Muhammad Ali was guided by legendary trainers, Angelo Dundee and Bundini Brown. As a former boxer, battling the progressive stages of dementia, I am very grateful to have the GPS SmartSole working my corner, ensuring me a better quality of life while maintaining my dignity and affording my family the peace of mind that my getting lost is a worry of the past.”

Ray Ciancaglini  –  former professional boxer and award-winning concussion awareness activist. Watch the Ciancaglini Family’s Testimonial Video.


2nd impact

Facts & Tips You Should Know About Alzheimer's and Dementia

IBM and Pfizer claim AI can predict Alzheimer’s onset with 71% accuracy

But IBM and Pfizer claim this latest work differs “significantly” from previous research and the application of AI to aid in predicting Alzheimer’s. In contrast to studies predicting onset that focus on subjects showing signs of cognitive impairment, the researchers worked with samples that were collected before subjects in the study experienced the first signs of impairment. They also assessed the risk of Alzheimer’s in the general population instead of solely targeting high-risk groups, capturing a spectrum of people including those without a family history of the disease or other risk factors.

The study included 703 samples from 270 participants, half of whom developed Alzheimer’s symptoms before the age of 85. (The mean time to diagnosis of mild Alzheimer’s was about seven-and-a-half years.) From a language perspective, the researchers considered over 87 variables including misspellings, use of punctuation, uppercasing, verbosity, lexical richness, and repetitiveness. Beyond this, they looked at age, gender, education, visuospatial and executive reasoning, object naming, memory, attention, abstraction, and test results from the Montreal cognitive assessment MoCA.

The IBM and Pfizer team analyzed the transcriptions of participants’ samples with natural language processing, which allowed them to tap into AI to pick up subtleties and changes in discourse they might have otherwise missed. And after obtaining consent and approval from the Institutional Review Board of Boston University, they drew on data from original subjects (and their offspring and spouses) in the Framingham Heart Study, a population-based study overseen by the U.S. Public Health Service to investigate the epidemiology and risks for cardiovascular disease. In the Framingham study, enrolled people are assessed with the two-minute Mini-Mental State Examination speech test every four years and neuropsychological exams every year when possible cognitive decline is reported by a family member.

These steps resulted in a larger dataset than those used in other studies and made it possible to verify projections with real-life results. For example, if the model developed by the IBM and Pfizer coauthors predicted a 65-year-old Framingham subject would develop Alzheimer’s by age 85, they could check that person’s records to find out whether the subject had been diagnosed with the disease and when the diagnosis occurred.

Research has shown that much of the data used to train algorithms for diagnosing diseases may perpetuate inequalities. Recently, a team of U.K. scientists found that almost all eye disease datasets come from patients in North America, Europe, and China, meaning eye disease-diagnosing algorithms are less certain to work well for racial groups from underrepresented countries. In another study, Stanford University researchers claimed that most of the U.S. data for studies involving medical uses of AI come from California, New York, and Massachusetts.

Indeed, the researchers found evidence of bias within their own model, which predicted Alzheimer’s onset for participants without a college degree more accurately than for those with (76% versus 70%). It also attained higher accuracy with women compared with men (83% versus 64%), performing on average 2.61 times better for female subjects compared with males.

Cognizant of this, the IBM and Pfizer researchers say they plan to use datasets that expand on the geographic, socioeconomic, and racial diversity of subjects as their work continues. “This breadth of data is often very difficult to come by in terms of disease prediction, and access to it allowed us to train these models with precision,” they wrote in a blog post. “We [will] continue to train our algorithms while always respecting core principles of privacy, transparency, and consent.”

The team believes that if their work — which is published in The Lancet eClinicalMedicine — were to eventually reach production systems, it could help doctors determine the need for more complex and demanding psychiatric assessments, testing, and monitoring. It might also open up the door to more successful clinical trials, as those deemed at a high likelihood of developing the disease could enter trials for preventative therapies.

“Our vision is that one day clinicians will have multiple AI and machine learning tools to help identify if an individual is at risk of developing Alzheimer’s disease. [Our model’s accuracy] is a significant increase over predictions based on clinical scales (59%), which is a prediction based on other available biomedical data from a patient,” the team continued. “One day, doctors might be able to use speech and blood tests in conjunction with each other, leveraging AI to help them predict the risk of Alzheimer’s disease and laying the groundwork for preventative measures.”

IBM and Pfizer claim AI can predict Alzheimer’s onset with 71% accuracy


GPS SmartSoles on CBS Channel 5 Phoenix AZ

AZ Insole with GPS could help locate lost dementia, Alzheimer’s patients in Arizona

The new device could help families keep track of loved ones who have dementia or Alzheimer's.

PHOENIX, AZ (3TV/CBS 5)– Lost and confused– it’s a sad reality for people who suffer from dementia and Alzheimer’s disease. Patients often leave their houses and forget how to get home. Now, there’s a new product geared toward helping those families– one of which remembers the day their father went missing in 2015.

[WATCH: How a new GPS device helped an AZ family track down grandpa]

Raul Lujan is like many of our grandparents or parents: he loves to smile in pictures with his wife and hangout with his great grandchildren. On a July day in 2015, he took a drive to the auto shop. “He went out that morning to take the car to get the tires check,” said Raul’s son, David. “It was about 9 a.m. and he never came back.”

Raul has dementia and his family had no idea where he was. “You get that sense of urgency that you have to find him,” said David.

Now, there’s a new product that could have helped the Lujan’s in 2015. It’s called SmartSole. It’s a $300 insole, which contains a GPS tracking device– giving loved ones the ability to see every step they take.

“You can’t rely on them putting something around their neck,” said GTX Corp CEO Patrick Bertagna. “It can stigmatize them, so that’s where the whole wearable concept came about– putting something that’s invisible and can’t be seen. Slip it into their shoes, and every time they walk out of the door they have a tracking device on them.”

David said it’s a great idea, and luckily his dad was found the same day after an Arizona Department of Public Safety Silver Alert was issued. For more information on SmartSole, click here.->> Click/tap here to download the free azfamily mobile app.

Full article here:

Copyright 2020 KPHO/KTVK (KPHO Broadcasting Corporation). All rights reserved.

As Seen On Fox News & Other Media Outlets- SmartSole on TV

GPS SmartSole has been getting some major exposure after featured this week on several prominent media outlets! Check out this selection of recent activity:


A GPS system hidden in a shoe helps track Alzheimer’s patients


“A shoe company called GPS Smartsole makes “smart” insoles to fit inside of a shoe for Alzheimer’s patients, to help track their movements if they wander away…”

A GPS system hidden in a shoe helps track Alzheimer’s patients


This Shoe Has GPS So You Can Keep Track Of Loved Ones With Alzheimer’s Or Dementia At All Times

Screen Shot 2020-02-06 at 2.40.19 PM  Screen Shot 2020-02-06 at 2.40.42 PM

“This is a wearable technology that not only provides peace of mind but can also save lives while preserving the privacy and dignity of the wearer….”

Full Article Here: Shot 2020-02-07 at 12.50.17 PM

Shoe with GPS embedded insole tracks ‘lost’ alzheimer’s & dementia patients

SmartSole Introduces GPS Tracking Insoles to Monitor Alzheimer’s/Dementia Patients.

“The number of missing Alzheimer’s and dementia patients is increasing steadily because looking after someone suffering these diseases isn’t easy….”

Full Article Here:


#withyou   #smartsole   #connectedandprotected   #trackwhatyoulove #iot #smartproducts #safety #healthcare  #exceptionmonitoring #assettracking #supplychain  #alzheimers #dementia



If you have a loved one with dementia or Alzheimer’s, the possibility that they might wander is a serious concern. Now, you can use soles with built-in GPS to track them everywhere they go.


The insoles are made by a company called GPS SmartSole. The insoles use GPS and cellular technology to track the person wearing them. You can use your phone or your computer to get the person’s location.

They look just like the insoles that you’d buy at the drugstore. The GPS tracking insoles are small, lightweight and discreet.


Patti Ciancaglini is the wife and caregiver of former professional boxer Ray Ciancaglini, who is now a concussion awareness activist. In a video, Patti explains that Ray enjoys walking around their outdoor property, but she worries that he’ll get lost.

SmartSole allows Ray to enjoy his walks without wandering into dangerous areas or getting lost. It also gives Patti peace of mind and allows her to keep Ray at home instead of taking him to a nursing home.


The SmartSole is designed for:

  • Adults with Alzheimer’s or dementia.
  • Children with special needs.
  • People with traumatic brain injury.
  • Anyone who’s at risk of wandering.

Therapist Lynette Louise, who specializes in working with developmentally disabled clients, uses the soles to help her clients get a taste of freedom while staying safe.


Alzheimer’s and dementia cases are on the rise. SmartSoles are a smart solution that will make life a little easier for everyone.

See full article here:

Science Daily- Projected doubling of Americans living with dementia

Women are at an increased risk of dementia and shoulder the majority of costsDate:

October 29, 2019
Milken Institute
The number of Americans living with Alzheimer’s disease or other dementias will double to nearly 13 million over the next 20 years, according to the new report.

The number of Americans living with Alzheimer’s disease or other dementias will double to nearly 13 million over the next 20 years, according to the new Milken Institute report “Reducing the Cost and Risk of Dementia: Recommendations to Improve Brain Health and Decrease Disparities.”

Milken Institute research estimates that by 2020, roughly 4.7 million women in the US will have dementia, accounting for nearly two-thirds of all people living with the condition.

The number of both women and men living with dementia is projected to nearly double by 2040, with the number of women projected to rise to 8.5 million, and the number of men expected to reach 4.5 million (up from 2.6 million in 2020), according to the report, which was released at the 2019 Milken Institute Future of Health Summit in Washington, D.C.

Over the next 20 years, the economic burden of dementia will exceed $2 trillion, with women shouldering more than 80 percent of the cumulative costs.

“Longer lifespans are perhaps one of the greatest success stories of our modern public health system,” explains Nora Super, lead author of the report and senior director of the Milken Institute Center for the Future of Aging. “But along with this success comes one of our greatest challenges. Our risk of developing dementia doubles every five years after we turn 65; by age 85, nearly one in three of us will have the disease.”

“With no cure in sight, we must double down on efforts to reduce the cost and risk of dementia,” she added. “Emerging evidence shows that despite family history and personal genetics, lifestyle changes such as diet, exercise, and better sleep can improve health at all ages.”

In collaboration with partners such as UsAgainstAlzheimer’s, AARP and Bank of America, Super and her co-authors, Rajiv Ahuja and Kevin Proff, have developed detailed recommendations and goals for policymakers, businesses, and communities to improve brain health, reduce disparities, and ultimately change the trajectory of this devastating disease.

      1) Promote strategies to maintain and improve brain health for all ages, genders, and across diverse populations

2) Increase access to cognitive testing and early diagnosis

3) Increase opportunities for diverse participation in research and prioritize funding to address health disparities

4) Build a dementia-capable workforce across the care continuum

5) Establish services and policies that promote supportive communities and workplaces for people with dementia and their caregivers

“As this important new report shows, dementia is one of the greatest public health challenges of our time,” said Sarah Lenz Lock, SVP, Policy & Brain Health at AARP. “It also demonstrates that we have the power to create change, whether by helping consumers maintain and improve their brain health, advancing research on the causes and treatment of dementia, or supporting caregivers who bear so much of the burden of this disease. We at AARP look forward to working with the Milken Institute and other key partners to achieve these goals.”

“Brain health broadens the fight against Alzheimer’s to include everyone and is the key to defeating stigma, increasing early detection, speeding up research — and ending this disease,” said Jill Lesser, a founding board member of UsAgainstAlzheimer’s. “This new look by the Milken Institute offers important recommendations and actions to help move us to an optimal system of brain health care in this country.”

Among the breakthrough findings, new data have “unveiled key discoveries about the differences between men’s and women’s brains, and how they age. Moreover, women typically take on greater caregiver responsibilities than men. Women caregivers are more likely to be impacted financially and leave their jobs or miss work to care for a family member. And research demonstrates that spousal caregivers may be at a higher risk of cognitive impairment or dementia than non-caregivers.”

“With this research, the Milken Institute has taken an important step to better understand the impacts of dementia on diverse populations,” said Lorna Sabbia, Head of Retirement and Personal Wealth Solutions, Bank of America. “This study, together with our own research on life stages, women, health and wellness, plays a critically important role in our efforts to educate and provide guidance to individuals and families throughout their financial lives.”

Full Article:  

Story Source:

Materials provided by Milken InstituteNote: Content may be edited for style and length.

Cite This Page:

Milken Institute. “Projected doubling of Americans living with dementia: Women are at much greater risk and shoulder the majority of costs.” ScienceDaily. ScienceDaily, 29 October 2019. <>. – Alzheimer’s: The Tale of Two Parents

Part 1 of a 3-part series. In this series, you’ll learn about the author’s experience as part of a local Alzheimer’s research study.

By Karen Crowson

This year I made a lifelong commitment. I agreed to participate in a longitudinal study of Alzheimer’s disease administered by UCSD’s Shiley-Marcos Alzheimer’s Disease Research Center.

Here’s my ‘why’. Both of my parents were diagnosed with Alzheimer’s. Were they destined to have this disease? I’m not sure, but this intense path we’ve been traveling together in the past decade has me curious to learn more.

Their journey with Alzheimer’s began long ago, although they didn’t know it at the time. Both were the youngest in their respective homes, with strong predictors of the disease from the females in their families. My dad’s mother and sister had memory issues, as did my mom’s three sisters and her mother. Not all these women had clinical diagnoses for their condition, but I am convinced they all suffered from the same thing. The men from these two families died from other causes, much earlier than the women so we aren’t sure if they also suffered from the disease.

When I was in high school, one of my grandmothers died at 80 from cancer. She was the first person I knew who had consistent memory problems. At the time, our family simply referred to it as senility. My dad’s mother also had cognitive concerns. Hers were more pronounced, and since she lived to be 94, I saw her more often over the years. She repeated herself incessantly and had concerning wandering bouts where Dad would get a call from some kind stranger who’d found her. At least she could remember her unique last name – helpful in delivering her back to Dad. In her case as well, my parents and their siblings just shrugged it off as age-related memory loss.

Mom was the youngest in her family and lived about two hours away from her siblings. At the same time as her retirement, her sisters were suffering from the effects of their Alzheimer’s, so she occasionally became a caregiver for each of them, staying two-three weeks at a time. She told us of the visits, but rarely discussed the details. We heard about my aunts’ outbursts, stubbornness, and ‘crazy’ talk. Mom seemed angry and resentful (which I totally understand), but even more than her compassion, I noticed the sense of duty with which she responded. If my parents wondered if they’d be affected by the disease someday, they never mentioned it. All went silent on the Alzheimer’s front…that was until my Dad’s behavior started to change.

Since I only saw my parents every two-three months during their early retirement years, I didn’t really notice any significant changes in my father. But looking back at it now, I see it quite differently. Chalking some of it off to less structure in day-to-day life, the personalities of my parents shifted, albeit subtlety. Dad took an interest in all things war-related, having landed in Normandy during World War II at the innocent age of 19. He started sorting through old photographs, framing some. He brought out his war medals and paraphernalia decorating the upstairs bedroom in a patriotic color scheme with flags, memorabilia and what almost amounted to a shrine for his service time. During this time frame, my brother accompanied our father to the 50th Anniversary of D-Day in 1994, an event he believes may have triggered Dad’s repeated lapses into his war memories.

My conversations with Mom were lengthy and usually consisted of complaints about Dad. His speech, on the other hand, was disjointed. With the stories we’d heard for a lifetime, he seemed to mix up people, places, and things, emphasizing seemingly unrelated details. During this time, Mom became agitated and very unhappy, expressing her desire to move somewhere else. In retrospect, I don’t know if it was strictly for the reasons, she claimed…feeling that the house was too big, the winters too harsh, and feeling less able to walk around the lake. While those were all true, I eventually gathered these complaints were stemming from her husband’s behavioral changes, and she was just scared.

As my folks moved closer to my brother and I, we were able to schedule more frequent visits. However, evident tension now existed between them. Dad’s personality had shifted, and consequently, so had Mom’s. Occasionally, I’d get secret phone calls from her, telling me about some incident with Dad. Initially, they were insignificant complaints. But as time went on, minor irritations escalated into even more worrisome situations involving driving, money, and encounters involving others. The result was Dad’s official diagnosis of Alzheimer’s. Mom’s diagnosis followed a few years later.

I’m surprised that my parents had taken little interest in learning more about the disease that had affected so many in my family. Once I was in the throes of the unpredictable and often painful results of Alzheimer’s with both parents at once, I was committed to learning as much as I could in order to better help them, and cope with my part in it all.  There is such a helpless, hopeless feeling for some on this journey and I am on a mission to learn, educate, and communicate with my sons and others should this become a factor in another family member’s life.

That mission started with the step of seeking out a support group in order to improve my understanding of the disease, my effectiveness in communication with my parents, and my interaction with other caregivers who knew how I felt. Finding an Alzheimer’s Support Group in Rancho Bernardo, led me to Alzheimer’s San Diego – and, eventually, to enrolling in UCSD’s clinical trial. Now, once a year, for the rest of my life, my memory and cognition skills will be tested. A spinal tap will draw precious samples of cerebrospinal fluid. And, hopefully, I will have contributed in finding a cure.

Article Here:

Alzheimer’s San Diego is here for you if you want to learn more about this topic, and to support anyone impacted by dementia. Get connected by calling 858.492.4400 or emailing To see our upcoming classes and workshops, click here.

These shoes help track people with dementia when they wander-

People with dementia are sometimes prone to hiding when they feel lost or scared

Restlessness and memory loss are a dangerous combination for people with dementia: They’re likely to leave familiar settings for situations they aren’t equipped to handle alone.

Dementia patients who might otherwise be able to live at home are often placed in assisted living facilities because their tendency to wander puts themselves or others in harm’s way.

Wandering seniors make the news every day. In fact, 35 states have implemented Silver Alert systems focused on notifying law enforcement about missing seniors with dementia and other individuals with cognitive impairments.

According to the Alzheimer’s Association, six in 10 people with dementia will wander.

One solution to managing wandering dementia patients may be right underfoot.

SmartSoles are insoles that are easily adapted to most types of shoe. Equipped with a GPS and cell capabilities, they send a message to a caregiver’s phone as soon as the person with dementia walks beyond a designated area, such as the confines of a home and backyard area.

According to the Alzheimer’s Association, six in 10 people with dementia will wander. One in four hospital beds are occupied by dementia patients, usually because they’ve fallen or become dehydrated after a long wander.

People with dementia are sometimes prone to hiding when they feel lost or scared, risking their health and alarming their caregivers.

Manufactured by Los Angeles-based GTX Corp., SmartSoles can help prevent these hospital visits while ensuring loved ones with dementia are always accounted for.

SmartSoles are available around the world, and are one of a host of trackers designed to help keep people with dementia from wandering into harm’s way.

See full article at:

The Earliest Signs of Alzheimer’s Everyone Over 50 Should Know – MSN Best Life

Tehrene Firman       6/17/2019     lifestyle  powered by Microsoft News


Read Full Article Here:

Photo by BBH Singapore on Unsplash

Alzheimer’s Disease Facts Your Doctor Does Not Tell You- MSN Medical Daily

Darwin Malicdem, June 26, 2019 Medical Daily

As we get older, the fear that we may eventually develop the disease also emerges.

Losing the ability to remember things is a major concern for almost every one reaching mid-life. Who would want to forget the first time you went outside the country? Or your first child’s birth? Your wedding day? And other happy moments with your family and friends?

As people get older and due to some factors in the environment, the risk of having Alzheimer’s disease would become higher. It could eventually steal most of your happy memories and adventures.

But what if you already have it? Or you have been showing initial signs of its development? Is it really frightening to live with Alzheimer’s? “Newly diagnosed adults and their family members are deeply concerned about how to navigate this uncertain future,” Laura Rice-Oeschger, who runs a caregiver wellness program for the University of Michigan’s Alzheimer’s Disease Center, told Women’s Health.

“They’re overwhelmed with ideas and fears, which often stem from a previous personal experience with Alzheimer’s or what they learn from the media,” she added.

Despite the negative effects of the condition, there are a number of ways for patients and their loved ones to maintain a meaningful life. Check out some interesting facts about Alzheimer’s disease that many doctors do not tell their patients about.

1. Spend More Time Having Fun

Following Alzheimer’s diagnosis, people immidiately lose hope and look at life differently. However, David Merrill, a neurologist and geriatric psychiatrist at Providence Saint John’s Health Center in Santa Monica, said the condition will take 15 to 20 years before fully affecting the brain.

It means Alzheimer’s disease symptoms do not appear overnight, giving you more years to be active and to enjoy life.

“There is no reason to be hopeless about an Alzheimer’s diagnosis,” Merrill said. “It’s never too late to start changing your lifestyle to slow down the progress of the disease.”

2. Many Alzheimer’s Patients Remain Independent

People with the disease can still do things for themselves. Simply focus on your strengths and the activities that you enjoy doing. Maintain a balance between activities that may no longer be convenient and those that provide benefits.

3. Change Your Diet and Lifestyle

As Alzheimer’s develops gradually, you can do something to delay the process. Simple changes to the food you eat and your daily activities can help. Try aerobic exercise, get enough sleep and follow a good diet to keep the brain healthy.

4. Socialize Could be a Form of  Treatment

Regular social interaction can help preserve mental health. Socialization plays a key role after the diagnosis. Having lunch with friends, engaging in online chats and joining local clubs could help keep people connected and the brain active.

“When it comes to the brain, I tell patients to ‘use it or lose it,’” Henry Paulson, a neurologist and director of the University of Michigan’s Alzheimer’s Disease Center, said. “People are social animals and socialization drives us. Do a lot of whatever mentally stimulates you.”

5. Join Support Programs

Talking to fellow patients could help navigate the challenges of life with Alzheimer’s disease. It also provides benefits to the caregiver. Rice-Oeschger said those who take care of the patients should also join a wellness program to maintain well-being.

6. Caregiving Helps

Caregiving helps patients significantly. But the work itself also helps those providing it.

A 2017 national poll by the University of Michigan showed that 78 percent of caregivers surveyed said their efforts are stressful, but the majority also found the responsibility as a rewarding experience.

7. Interactions May Become Different So be Ready

The changes in the personality and memory could make things difficult both for the patient and the caregiver. One caregiver, named Kelly, from Cypress, Texas, shared her experience in taking care of her mother with mid- to late-stage Alzheimer’s.

“Your sweet, innocent [mother] who does not swear will curse like a sailor and call you names,” she said. “Try to remember it is not her doing these things… it’s this disease.”

Accept that the condition is causing changes that your loved one never dreamed of having. Adjust and try to find things that would make them feel comfortable.

Article found here:

Photo by Tiago Muraro on Unsplash

GTX SmartSole Shown at Glenner Alzheimer’s Family Center Town Square

GTX’s SmartSole were proudly displayed this past Saturday at the Glenner Alzheimer’s Family Center Town Square®, the nation’s first immersive reminiscence therapy day center for people with dementia. The event gathered an array of San Diego innovators in the dementia care space and was open to both industry professionals and family caregivers.

This was the first event of its kind held at the new center that opened this past August. Mindy Baker, PhD, Director of Education at the Glenner Centers, the organization that founded the innovative Town Square®, spoke about the benefits of reminiscence therapy for people with dementia. The entirety of Town Square® is designed to replicate a 1950s small town in an effort to facilitate reminiscence.

“The SmartSole is a GPS wearable tracking technology that helps to reduce the incidence of loved ones with dementia becoming lost due to dangerous wandering,” stated Lisa D. Tyburski, Chief Marketing Officer of George G. Glenner Alzheimer’s Family Centers, Inc.® | Town Square®

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